Advancing research and practice in HIV and rehabilitation: a framework of research priorities in HIV, disability and rehabilitation

BMC Infectious Diseases

Elisse Zack^1,12  Nkem Iku⁷  Rosalind Baltzer-Turje⁵  Brenda Merritt^1,11  Patriic Gayle⁸  Catherine Worthington³  Larry Baxter^1,12  Jacqueline Gahagan^1,10  William Chegwidden¹  Jessica Cattaneo⁶  Richard Harding⁹  Patricia Solomon²  Francisco Ibáñez-Carrasco⁴  Kelly K O’Brien² 

[1] University College Hospitals NHS Foundation Trust, London, United Kingdom;School of Rehabilitation Science, McMaster University, 1400 Main Street West, Room 403, Hamilton, ON, Canada;School of Public Health and Social Policy, University of Victoria, Human and Social Development Building, 3800 Finnerty Road, Victoria, BC, Canada;Ontario HIV Treatment Network, 1300 Yonge Street, Suite 600, Toronto, ON, Canada;Dr. Peter AIDS Foundation, 1110 Comox Street, Vancouver, BC, Canada;AIDS Committee of Toronto, 399 Church Street, 4th Floor, Toronto, ON, Canada;Department of Physical Therapy, University of Toronto, 500 University Avenue, Room 160, Toronto, ON, Canada;Three Flying Piglets, London, United Kingdom;Cicely Saunders Institute, School of Medicine, King’s College London, Bessemer Road, London, United Kingdom;School of Health and Human Performance, Dalhousie University, Stairs House, 6230 South Street, Halifax, NS, Canada;School of Occupational Therapy, Dalhousie University, Forrest Building, Room 215, 5869 University Avenue, Halifax, NS, Canada;Canadian Working Group on HIV and Rehabilitation, 600 Bay Street, Suite 600, Toronto, ON, Canada

关键词: Aging;    Research;    Disability;    Rehabilitation;    HIV/AIDS;   

Others  :  1090028
DOI  :  10.1186/s12879-014-0724-8

 received in 2014-07-10, accepted in 2014-12-17,  发布年份 2014

【 摘 要 】

Background

HIV increasingly is experienced as a complex chronic illness where individuals are living longer with a range of physical, cognitive, mental and social health-related challenges associated with HIV, comorbidities and aging, a concept that may be termed ‘disability’. Rehabilitation such as physical therapy and occupational therapy can help address disability and has the potential to improve quality of life in people living with HIV. Hence, the role for rehabilitation in the context of HIV, aging and comorbidities is emerging. Our aim was to establish a framework of research priorities in HIV, disability and rehabilitation.

Methods

We convened people living with HIV, clinicians, researchers, service providers, representatives from community-based organizations and policy and funding stakeholders to participate in the first International Forum on HIV and Rehabilitation Research. We conducted a multi-stakeholder consultation to identify current and emerging issues in HIV, disability and rehabilitation. Data were collated and analyzed using content analytical techniques.

Results

Ninety-two participants attended the Forum from Canada, United Kingdom (UK), Ireland and the United States. Situated within three overarching themes (episodic health and disability across the life course; rehabilitation; and methodological advances), the Framework of Research Priorities in HIV, Disability and Rehabilitation includes six research priorities: 1) episodic health and disability; 2) aging with HIV across the life course; 3) concurrent health conditions; 4) access to rehabilitation and models of rehabilitation service provision; 5) effectiveness of rehabilitation interventions; and 6) enhancing outcome measurement in HIV and rehabilitation research. The Framework includes methodological considerations and environmental and personal contextual factors (or lenses) through which to approach research in the field. Knowledge translation should be implemented throughout the development and application of research knowledge to inform HIV clinical practice, programming and policy.

Conclusions

These priorities highlight the emerging priorities of living long-term with HIV and outline a plan for HIV and rehabilitation research in resource-rich countries such as the UK and Canada.

【 授权许可】

   
2014 O'Brien et al.; licensee BioMed Central.

【 图 表 】

Figure 1.

Figure 3.

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