期刊论文详细信息
BMC Pregnancy and Childbirth
Transition to motherhood in type 1 diabetes: design of the pregnancy and postnatal well-being in transition questionnaires
Jane Speight1  Mari Botti4  Christel Hendrieckx3  Trisha Dunning2  Bodil Rasmussen5 
[1] AHP Research, 16 Walden Way, Hornchurch, UK;Deakin University- Barwon Health, Waterfront, PO Box 281, Geelong, Victoria 3220, Australia;Centre for Mental Health and Well-being Research, School of Psychology, Deakin University, 221 Burwood Highway, Burwood, Victoria 3125, Australia;Deakin University-Epworth HealthCare, Centre for Clinical Research Nursing, 89 Bridge Road, Richmond, Victoria 3121, Australia;Deakin University, School of Nursing and Midwifery, 221 Burwood Highway, Burwood, Victoria 3125, Australia
关键词: Psychological well-being;    Social support;    Self-management;    Transitions;    Questionnaire;    Postnatal;    Pregnancy;    T1DM (type 1 diabetes);   
Others  :  1138176
DOI  :  10.1186/1471-2393-13-54
 received in 2012-11-14, accepted in 2013-02-14,  发布年份 2013
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【 摘 要 】

Background

Life transitions are associated with high levels of stress affecting health behaviours among people with Type 1 diabetes. Transition to motherhood is a major transition with potential complications accelerated by pregnancy with risks of adverse childbirth outcomes and added anxiety and worries about pregnancy outcomes. Further, preparing and going through pregnancy requires vigilant attention to a diabetes management regimen and detailed planning of everyday activities with added stress on women. Psychological and social well-being during and after pregnancy are integral for good pregnancy outcomes for both mother and baby. The aim of this study is to establish the face and content validity of two novel measures assessing the well-being of women with type 1 diabetes in their transition to motherhood, 1) during pregnancy and 2) during the postnatal period.

Methods

The approach to the development of the Pregnancy and Postnatal Well-being in T1DM Transition questionnaires was based on a four-stage pre-testing process; systematic overview of literature, items development, piloting testing of questionnaire and refinement of questionnaire. The questionnaire was reviewed at every stage by expert clinicians, researchers and representatives from consumer groups. The cognitive debriefing approach confirmed relevance of issues and identified additional items.

Results

The literature review and interviews identified three main areas impacting on the women’s postnatal self-management; (1) psychological well-being; (2) social environment, (3) physical (maternal and fetal) well-being. The cognitive debriefing in pilot testing of the questionnaire identified that immediate postnatal period was difficult, particularly when the women were breastfeeding and felt depressed.

Conclusions

The questionnaires fill an important gap by systematically assessing the psychosocial needs of women with type 1 diabetes during pregnancy and in the immediate postnatal period. The questionnaires can be used in larger data collection to establish psychometric properties. The questionnaires potentially play a key role in prospective research to determine the self-management and psychological needs of women with type 1 diabetes transitioning to motherhood and to evaluate health education interventions.

【 授权许可】

   
2013 Rasmussen et al; licensee BioMed Central Ltd.

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【 参考文献 】
  • [1]Rasmussen B: Turning Points and Transitions: Experiences of young women with Type 1 diabetes. Deakin University: Doctor of Philosophy thesis; 2005.
  • [2]Rasmussen B, Ward G, Jenkins A, King SJ, Dunning T: Young adults’ management of Type 1 diabetes during life transitions. J Clin Nurs 2011, 20:1981-1992.
  • [3]Anderson BJ, Wolpert HA: A developmental perspective on the challenge of diabetes education and care during the young adult period. Patient Educ Couns 2004, 53:347-352.
  • [4]Anderson BJ, McKay SV: Barriers to glycemic control in youth with type 1 diabetes and type 2 diabetes. Pediatr Diabetes 2011, 12:197-205.
  • [5]Rasmussen B, O’Connell B, Dunning P, Cox H: Young women with type 1 diabetes management of turning points and transitions. Qual Health Res 2007, 17:300-310.
  • [6]Australian Institute of Health and Welfare: Diabetes in pregnancy: its impact on Australian women and their babies. Canberra: AIHW; 2010. [Diabetes series no. 14. Cat. no. CVD 52]
  • [7]Craig ME, Twigg SM, Donaghue KC, Cheung NW, Cameron FJ, Conn J, Jenkins AJ, Silink M, for the Australian Type 1 Diabetes Guidelines Expert Advisory Group: National evidence‐based clinical care guidelines for T1DM diabetes in children, adolescents and adults. Canberra: Australian Government Department of Health and Ageing; 2011.
  • [8]Australian Institute of Health and Welfare: Diabetes prevalence in Australia: detailed estimates for 2007–08. Canberra: AIHW; 2011. [Diabetes series no. 17. Cat. no. CVD 56]
  • [9]Dalfra M, Nicolucci A, Bisson T, Bonsembiante B, Lapolla A: Quality of life in pregnancy and post-partum: a study in diabetic patients. Qual Life Res 2012, 21:291-298.
  • [10]Berg M: Pregnancy and diabetes: how women handle the challenges. J Perinat Educ 2005, 14:23-32.
  • [11]Berg M, Sparud-Lundin C: Experiences of professional support during pregnancy and childbirth - a qualitative study of women with type 1 diabetes. BMC Pregnancy Childbirth 2009, 9:27-34. BioMed Central Full Text
  • [12]Rasmussen B, Dunning T, Cox H, O’Connell B: The mother-daughter guilt dynamic: effects of type 1 diabetes during life transitions. J Clin Nurs 2008, 17:280-389.
  • [13]Sparud-Lundin C, Wennergren M, Elfvin A, Berg M: Breastfeeding in women with type 1 diabetes. Diabetes Care 2011, 34:296-301.
  • [14]Saez-de-Ibarra L, Gaspar R, Obesso A, Herranz L: Glycaemic behaviour during lactation: postpartum practical guidelines for women with type 1 diabetes. Practical Diabetes 2003, 20:271-275.
  • [15]Sparud-Lundin C, Marie B: Extraordinary exposed in early motherhood-a qualitative study exploring experiences of mothers with type 1 diabetes. BMC Womens Health 2011, 11:10-18. BioMed Central Full Text
  • [16]Lawrence JM: Women with diabetes in pregnancy: different perceptions and expectations. Best Pract Res Clin Obstet Gynaecol 2011, 25:15-24.
  • [17]Chich-Hsiu H: Measuring postpartum stress. J Adv Nurs 2005, 50:417-424.
  • [18]Dipietro JA, Costigan KA, Sipsma HL: Continuity in self-report measures of maternal anxiety, stress, and depressive symptoms from pregnancy through two years postpartum. J Psychosom Obstet Gynaecol 2008, 29:115-124.
  • [19]Hoffenaar P, van Balen F, Hermanns J: The impact of having a baby on the level and content of Women’s well-being. Soc Indic Res 2010, 97:279-295.
  • [20]Pop V, Pommer A, Pop-Purceleanu M, Wijnen H, Bergink V, Pouwer F: Development of the Tilburg pregnancy distress scale: the TPDS. BMC Pregnancy Childbirth 2011, 11:80. BioMed Central Full Text
  • [21]Langer N, Langer O: Pre-existing diabetics: relationship between glycemic control and emotional status in pregnancy. J Matern Fetal Med 1998, 7:257-263.
  • [22]Rasmussen B, Hendrieckx C, Clarke B, Botti M, Dunning T, Jenkins A, Hagger V, Speight J: Key issues for women with type 1 diabetes transitioning to motherhood: a structured literature review. J Clin Nursunder review
  • [23]Willis GB: Cognitive interviewing: a tool for improving questionnaire design”. California: Sage Publications Inc; 2005.
  • [24]Soltani H, Arden M: Factors associated with breastfeeding up to 6 months postpartum in mothers with diabetes. J Obstet Gynecol Neonatal Nurs 2009, 38:586-94.
  • [25]Sorkio S, Cuthbertson D, Bärlund S, Reunanen A, Nucci AM, Berseth CL, Koski K, Ormisson A, Savilahti E, Uusitalo U, Ludvigsson J, Becker DJ, Dupré J, Krischer JP, Knip M, Åkerblom HK, Virtanen SM: Breastfeeding patterns of mothers with type 1 diabetes: results from an infant feeding trial. Diabetes Metab Res Rev 2012, 26:206-11.
  • [26]Hummel S, Winkler C, Schoen S, Knopff A, Marienfeld S, Bonifacio E, Ziegler AG: Breastfeeding habits in families with type 1 diabetes 2. Diabet Med 2007, 24:671-6.
  • [27]Beck CT, Records K, Rice M: Further development of the postpartum depression predictors inventory-revised. J Obstet Gynecol Neonatal Nurs 2006, 35:735-45.
  • [28]Oppo A, Mauri M, Ramacciotti D, Camilleri V, Banti S, Borri C, Rambelli C, Montagnani MS, Cortopassi S, Bettini A, Ricciardulli S, Montaresi S, Rucci P, Beck CT: Risk factors for postpartum depression: the role of the postpartum depression predictors inventory-revised (PDPI-R). Arch Womens Ment Health 2009, 12:239-49.
  • [29]Cox JL, Holden JM, Sagovsky R: Detection of postnatal depression: development of the 10-item Edinburgh postnatal depression scale. Br J Psychiatry 1987, 150:782-86.
  • [30]Rasmussen-Torvik LJ, Harlow B: The association between depression and diabetes in perinatal period. Curr Diab Rep 2010, 10:217.
  • [31]Van Bastelaar KMP, Pouwer F, Geelhoed-Duijvestijn PHLM, Tack CJ, Bazelmans E, Beekman AT, Heine RJ, Snoek FJ: Diabetes-specific emotional distress mediates the association between depressive symptoms and glycaemic control in type 1 and type 2 diabetes. Diabet Med 2010, 27(7):798-803.
  • [32]Roy T, Lloyd CE, Pouwer F, Holt RIG, Sartorius N: Screening tools used for measuring depression among people with type 1 and type 2 diabetes: a systematic review. Diabet Med 2012, 29:164-75.
  • [33]Dalfrà M, Nicolucci A, Bisson T, Bonsembiante B, Lapolla A: Quality of life in pregnancy and post-partum: a study in diabetic patients. Qual Life Res 2012, 21:1-8.
  • [34]Levy-Shiff R, Lerman M, Har-Even D, Hod M: Maternal adjustment and infant outcome in medically defined high-risk pregnancy. Dev Psychol 2002, 38:93-103.
  • [35]Fisher L, Skaff MM, Mullan JT, Arean P, Mohr D, Masharani U, Glasgow R, Laurencin G: Clinical depression versus distress among patients with type 2 diabetes. Not a question of semantics. Diabetes Care 2007, 30:542-548.
  • [36]Chick N, Meleis AI: Transitions: a nursing concern . In Nursing research methodology: issues and implementation. Edited by Chinn P. Rockville, Maryland: Aspen Publishers; 1986:237-57.
  • [37]Meleis AI, Sawyer LM, Im E, Messias DKH, Schumacher K: Experiencing transitions: an emerging middle-range theory. Adv Nurs Sci 2000, 23:12-28.
  • [38]Ryff CD: Happiness is everything, or is it? Explorations on the meaning of psychological well-being. J Pers Soc Psychol 1989, 57:1069-81.
  • [39]Ryff CD, Keyes CLM: The structure of psychological well-being revisited. J Pers Soc Psychol 1995, 69:719-27.
  • [40]Debono ME: The impact of diabetes on psychological well being and quality of life. The role of patient education. Psychol Health Med 2007, 12:545-55.
  • [41]Northam EA, Lin A, Finch S, Werther GA, Cameron FJ: Psychosocial well-being and functional outcomes in youth with Type 1 Diabetes 12 years after disease onset. Diabetes Care 2010, 33:1430-7.
  • [42]Karlsen B, Idsoe T, Dirdal I, Rokne Hanestad B, Bru E: Effects of a group-based counselling programme on diabetes-related stress, coping, psychological well-being and metabolic control in adults with type 1 or type 2 diabetes’. Patient Educ Couns 2004, 53:299-308.
  • [43]Spirito A, Ruggiero L, Coustan D, McGarvey S, Bond A: Mood state of women with diabetes during pregnancy. J Reprod Infant Psychol 1992, 10(1):29-38.
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