期刊论文详细信息
BMC Public Health
An exploratory survey measuring stigma and discrimination experienced by people living with HIV/AIDS in South Africa: the People Living with HIV Stigma Index
Elna van der Ryst3  Gustaaf Wolvaardt4  Shaun E Mellors2  Pieter Kruger1  Monika ML dos Santos1 
[1] Psychology Department, University of South Africa, PO Box 392, 0004 Pretoria, South Africa;International HIV/AIDS Alliance, Hove, UK;Independent Consultant, The Research Network, Sandwich, UK;Foundation for Professional Development (FPD), Pretoria, South Africa
关键词: South African context;    Discrimination;    Stigma;    HIV/AIDS;   
Others  :  1161303
DOI  :  10.1186/1471-2458-14-80
 received in 2013-04-25, accepted in 2014-01-22,  发布年份 2014
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【 摘 要 】

Background

The continued presence of stigma and its persistence even in areas where HIV prevalence is high makes it an extraordinarily important, yet difficult, issue to eradicate. The study aimed to assess current and emerging HIV/AIDS stigma and discrimination trends in South Africa as experienced by people living with HIV/AIDS (PLHIV).

Methods

The PLHIV Stigma Index, a questionnaire that measures and detects changing trends in relation to stigma and discrimination experienced by PLHIV, was used as the survey tool. The study was conducted in 10 clinics in four provinces supported by the Foundation for Professional Development (FPD), with an interview total of 486 PLHIV. A cross-sectional design was implemented in the study, and both descriptive and inferential analysis was conducted on the data.

Results

Findings suggest that PLHIV in this population experience significant levels of stigma and discrimination that negatively impact on their health, working and family life, as well as their access to health services. Internalised stigma was prominent, with many participants blaming themselves for their status.

Conclusion

The findings can be used to develop and inform programmes and interventions to reduce stigma experienced by PLHIV. The current measures for dealing with stigma should be expanded to incorporate the issues related to health, education and discrimination experienced in the workplace, that were highlighted by the study.

【 授权许可】

   
2014 dos Santos et al.; licensee BioMed Central Ltd.

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【 参考文献 】
  • [1]Goffman E: Stigma: notes on the management of a spoiled identity. Engelwood Cliffs, New Jersey: Prentice Hall; 1963.
  • [2]Deacon H, Stephney I, Prosalendis S: Understanding HIV/AIDS stigma: a theoretical and methodological analysis. HSRC Press: Cape Town; 2009. http://www.hsrcpress.ac.za/product.php?productid=2088 webcite
  • [3]Wailoo K: Stigma, race, and disease in twentieth century America. Lancet 2001, 367:531-533.
  • [4]Link BG, Phelan JC: Stigma and its public health implications. Lancet 2006, 367(9509):528-529.
  • [5]Valdiserri RO: HIV/AIDS stigma: an impediment to public health. Am J Public Health 2012, 92(3):341-342.
  • [6]Alonzo AA, Reynolds NR: Stigma, HIV and AIDS: an exploration and elaboration of a stigma trajectory. Soc Sci Med 1995, 41(3):303-315.
  • [7]Holzemer WL, Human S, Arudo J, Rosa ME, et al.: Exploring HIV stigma and quality of life for persons living with HIV infection. J Assoc Nurses AIDS Care 2009, 20(3):161-168.
  • [8]Mokoae LN, Greeff M, Phethu RD, Uys LR, et al.: Coping with HIV/AIDS stigma in five African countries. J Assoc Nurses AIDS Care 2008, 19(2):137-146.
  • [9]Herek M: Thinking about AIDS and stigma: a psychologist’s perspective. J Law Med Ethics 2002, 30(4):594.
  • [10]Aggleton P, Wood K, Malcolm A: HIV-related stigma, discrimination and human rights violation: case studies on successful programmes. Geneva: UNAIDS best practice collection; 2005. http://data.unaids.org/publications/irc-pub06/jc999-humrightsviol_en.pdf webcite
  • [11]Shisana O, Simbayi LC: South African National HIV prevalence, HIV incidence, behaviour and communication survey. Human Sciences Research Council: Cape Town; 2007. [Technical Report]
  • [12]Shisana O, Rehle T, Simbayi LC, Parker W, et al.: South African National HIV prevalence, HIV incidence, behaviour and communication survey. Human Sciences Research Council: Cape Town; 2005.
  • [13]Patterson AS (Ed): The African state and the AIDS crisis. Hants: Ashgate Publishing Limited; 2005.
  • [14]Dlamini PS, Kohi TW, Uys LR, Phetlhu RD, et al.: Verbal and physical abuse and neglect as manifestation of HIV/AIDS stigma in five African countries. Public Health Nurs 2007, 24(5):389-399.
  • [15]Hubert KW, Hubert EH, Obyerodhyambo O: Comparing HIV-related symbolic stigma in six African countries: social representations in young people's narratives. Soc Sci Med 2011, 73(8):1257-1265.
  • [16]Achmat Z: Verbatim transcript of the address to the AIDS in Context Conference held at the University of the Witwatersrand on the 7th April 2001. Accessed on the 12 February 2013 from http://www.tac.org.za; webcite 2001
  • [17]Human Sciences Research Council: South African National HIV Prevalence, Incidence, Behaviour and Communication Survey. Cape Town: HSRC Press; 2008.
  • [18]Brown L, Macintyre K, et al.: Interventions to reduce HIV/AIDS stigma: What have we learned? AIDS Educ Prev 2003, 15(1):49-69.
  • [19]Stackpool-Moore L, Chirwa ML, De Croy S, Hudson A, Kamkwamba D, Kundecha RM, Makhaka PT, Onyango S, Sinyemu E: An antidote to stigma? The people living with HIV stigma index in Malawi and the United Kingdom. In Stigma, discrimination and living with HIV/AIDS. Edited by Liamputtong P. New York: Springer; 2003.
  • [20]International Parenthood Federation (IPF): The People Living with HIV Stigma Index: an index to measure the stigma and discrimination experienced by people living with HIV questionnaire. London: International Parenthood Federation; 2008.
  • [21]Stackpool-Moore L, et al.: The people living with HIV stigma index - a research initiative by and for positive people. 2008. [AIDS 2008 - XVII International AIDS Conference] Abstract no. THPE0745
  • [22]International Parenthood Federation (IPF): The People Living with HIV Stigma Index: an index to measure the stigma and discrimination experienced by people living with HIV. London: International Parenthood Federation; 2008. Accessed on 1 November 2013 at http://www.stigmaindex.org webcite
  • [23]SPSS Software: predictive analytics software and solutions. : IBM; Accessed on 12 November 2013 at http://www-01.ibm.com/software/analytics/spss/ webcite
  • [24]StatSoft Southern Africa Research (Pty) LtdAccessed on 12 November 2013 at http://www.statsoft.co.za/ webcite
  • [25]Statistics South Africa Living Conditions Survey: Poverty Profile of South Africa; Application of the poverty lines on the LCS; 2008/2009. : ; Accessed on 14 November 2013 at http://www.statssa.gov.za/publications/P0310/P03102008.pdf webcite
  • [26]Stangl AL, Grossman CI: Global action to reduce HIV stigma and discrimination. J Int AIDS Soc 2012, 16:2.
  • [27]NEPHAK, GNP+: PLHIV Stigma Index Kenyan Country Assessment, Nairobi. : NEPHAK; 2011.
  • [28]SWANNEPHA, UNFPA, UNAIDS: Assessment of the stigma index among people living with HIV and AIDS in Swaziland. : ; 2011.
  • [29]HIV Leadership through Accountability Programme: GNP+, NEPWHAN: PLHIV stigma index Nigeria Country Assessment. Amsterdam: GNP+; 2011.
  • [30]Cloete A, Strebel A, Simbayi L, van Wyk B, et al.: Challenges faced by people living with HIV/AIDS in Cape Town, South Africa: issues for group risk reduction. AIDS Res Treat 2010. Accessed on 8 December 2012 at http://www.hindawi.com/journals/art/2010/420270/ webcite
  • [31]Kalichman SC, Simbayi L: Traditional beliefs about the cause of AIDS and AIDS-related stigma in South Africa. AIDS Care 2004, 16(5):572-580.
  • [32]Kahn L: Experiences of HIV/AIDS diagnosis, disclosure and stigma in an urban informal settlement in the Cape Peninsula: a qualitative exploration. Technical Report. Centre for Social Science Research: University of Cape Town; 2004.
  • [33]Lee RS, Kochman A, et al.: Internalized stigma among people living with HIV-AIDS. AIDS Behav 2002, 6(4):309-319.
  • [34]Parker R, Aggleton A: HIV and AIDS-related stigma and discrimination: a conceptual framework and implications for action. Soc Sci Med 2003, 57(1):13-24.
  • [35]Parry C, Petersen P, Dewing S, Carney T, et al.: Rapid assessment of drug-related HIV risk among men who have sex with men in three South African cities. Drug Alcohol Depend 2008, 95(1-2):45-53.
  • [36]Lane T, Shade SB, McIntyre J, Morin SF: Alcohol and sexual risk behavior among men who have sex with men in South African township communities. AIDS Behav 2008, 12(1):S78-S85.
  • [37]Jewkes RK, Levin JB, Penn-Kekana LA: Gender inequalities, intimate partner violence and HIV preventative practices: findings of a South African cross-sectional study. Soc Sci Med 2003, 56(1):125-134.
  • [38]Kalichman SC, Simbayi L: Perceived social context of AIDS in a black township in Cape Town. Afr J AIDS Res 2003, 2(1):33-38.
  • [39]Strebel A, Crawford M, Crawford M: Social constructions of gender roles, gender-based violence and HIV/AIDS in two communities of the Western Cape, South Africa. SAHARA J 2006, 528(3):516-528.
  • [40]Stewart R, Pulerwitz R: Addressing HIV/AIDS stigma and discrimination in a workplace program, emerging findings. US: Washington DC: Office of HIV/AIDS, Bureau for Global Health; 2002. Accessed on 29 November 2012 from http://www.popcouncil.org/pdfs/horizons/eskombslnsum.pdf webcite
  • [41]Wolitski RJ, Janssen RS, Onorato IM, Purcell DW, et al.: An overview of prevention with people living with HIV. In Positive Prevention: Reducing HIV Transmission among People Living with HIV/AIDS (1stedition). Edited by Kalichman SC. New York: Kluwer Academic/Plenum Publishers; 2005:1-28.
  • [42]Gruskin S, Ferguson L, O’Malley J: Ensuring sexual and reproductive health for people living with HIV: an overview of key human rights, policy and health systems issues. Reprod Health Matters 2007, 15(29 Suppl):4-26.
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