期刊论文详细信息
BMC Geriatrics
Subjective caregiver burden: validity of the 10-item short version of the Burden Scale for Family Caregivers BSFC-s
Hannes Grau3  Thomas Lichte1  Hendrik Berth2  Elmar Graessel3 
[1]Institute of General Practice and Family Medicine, Otto-von-Guericke-Universität Magdeburg, Leipziger Straße 44, D-39120 Magdeburg, Germany
[2]Medical Psychology and Medical Sociology, Universitätsklinikum Carl Gustav Carus Dresden, Fetscherstr. 74, D-01307 Dresden, Germany
[3]Centre of Health Services Research in Medicine, Department of Psychiatry and Psychotherapy, Friedrich-Alexander-Universität Erlangen-Nürnberg, Schwabachanlage 6, D-91054 Erlangen, Germany
关键词: Discriminatory power;    Item difficulty;    Validity;    Reliability;    Factor analysis;    Short version of the Burden Scale for Family Caregivers;    Subjective caregiver burden;   
Others  :  855373
DOI  :  10.1186/1471-2318-14-23
 received in 2013-11-05, accepted in 2014-02-12,  发布年份 2014
PDF
【 摘 要 】

Background

Subjective burden is a central variable describing the situation encountered by family caregivers. The 10-item short version of the Burden Scale for Family Caregivers (BSFC-short/BSFC-s) was developed to provide an economical measure of this variable. The present study examined the reliability and validity of the BSFC-s.

Methods

Comprehensive data from “the IDA project” were the basis of the calculations, which included 351 dyads and examined medical data on people with dementia, interview data from their family caregivers, and health insurance data. A factor analysis was performed to explore the structure of the BSFC-s; Cronbach’s alpha was used to evaluate the internal consistency of the scale. The items were analyzed to determine the item difficulty and the discriminatory power. Construct validity was tested with five hypotheses. To establish the predictive validity of the BSFC-s, predictors of institutionalization at a follow-up time of 2.5 years were analyzed (binary logistic regression).

Results

The BSFC-s score adhered to a one-factor structure. Cronbach's alpha for the complete scale was .92. A significant increase in the BSFC-s score was observed when dementia progressed, disturbing behavior occurred more frequently, care requirements increased, and when caregivers were diagnosed with depression. Caregiver burden was the second strongest predictor of institutionalization out of a total of four significant predictors.

Conclusions

All hypotheses that referred to the construct validity were supported. The BSFC-short with its ten items is a very economical instrument for assessing the caregiver’s total subjective burden in a short time frame. The BSFC-s score has predictive validity for the institutionalization of people with dementia. Therefore it is an appropriate outcome measure to evaluate caregiver interventions. The scale is available for free in 20 languages (http://www.caregiver-burden.eu webcite). This availability facilitates the comparison of international research findings.

【 授权许可】

   
2014 Graessel et al.; licensee BioMed Central Ltd.

【 预 览 】
附件列表
Files Size Format View
20140722033228284.pdf 275KB PDF download
34KB Image download
39KB Image download
【 图 表 】

【 参考文献 】
  • [1]Glendinning C, Tjadens F, Arksey H, Moree M, Moran N, Nies H: Care provision within families and its socio-economic impact on care providers. Working Paper No EU 2342. University of York: Social Policy Research Unit; 2009.
  • [2]Pearlin LI, Mullan JT, Semple SJ, Skaff MM: Caregiving and the stress process: an overview of concepts and their measures. Gerontologist 1990, 30(5):583-594.
  • [3]Lazarus RS, Folkman S: Stress, appraisal, and coping. New York: Springer; 1984.
  • [4]Yaffe K, Fox P, Newcomer R, Sands L, Lindquist K, Dane K, Covinsky K: Patient and caregiver characteristics and nursing home placement in patients with dementia. JAMA 2002, 287(16):2090-2097.
  • [5]Gaugler JE, Leach CR, Clay T, Newcomer RC: Predictors of nursing home placement in African Americans with dementia. J Am Geriatr Soc 2004, 52(3):445-452.
  • [6]McCann JJ, Hebert LE, Li Y, Wolinsky FD, Gilley DW, Aggarwal NT, Miller JM, Evans DA: The effect of adult day care services on time to nursing home placement in older adults with Alzheimer’s disease. Gerontologist 2005, 45(6):754-763.
  • [7]Pinquart M, Sörensen S: Differences between caregivers and noncaregivers in psychological health and physical health: a meta-analysis. Psychol Aging 2003, 18(2):250-267.
  • [8]Gräßel E: Häusliche Pflege dementiell und nicht dementiell Erkrankter Teil II: Gesundheit und Belastung der Pflegenden [Home care of demented and non-demented patients. II: health and burden of caregivers]. Z Gerontol Geriatr 1998, 31(1):57-62.
  • [9]Schulz R, Beach SR: Caregiving as a risk factor for mortality: the Caregiver Health Effects Study. JAMA 1999, 282(23):2215-2219.
  • [10]Hansberry MR, Chen E, Gorbien MJ: Dementia and elder abuse. Clin Geriatr 2005, 21(2):315-332.
  • [11]Yan E, Kwok T: Abuse of older Chinese with dementia by family caregivers: an inquiry into the role of caregiver burden. Int J Geriatr Psychiatry 2011, 26(5):527-535.
  • [12]Kim Y, Schulz R: Family caregivers’ strains: comparative analysis of cancer caregiving with dementia, diabetes, and frail elderly caregiving. J Aging Health 2008, 20(5):483-503.
  • [13]Kosberg JI, Cairl RE, Keller DM: Components of burden: interventive implications. Gerontologist 1990, 30(2):236-242.
  • [14]Zarit SH, Reever KE, Bach-Peterson J: Relatives of the impaired elderly: correlates of feelings of burden. Gerontologist 1980, 20(6):649-655.
  • [15]Gräsel E, Chiu T, Oliver R: Development and validation of the Burden Scale for Family Caregivers (BSFC). Toronto (Canada): Comprehensive Rehabilitation and Mental Health Services; 2003.
  • [16]Holle R, Gräßel E, Ruckdaschel S, Wunder S, Mehlig H, Marx P, Pirk O, Butzlaff M, Kunz S, Lauterberg J: Dementia care initiative in primary practice - study protocol of a cluster randomized trial on dementia management in a general practice setting. BMC Health Serv Res 2009, 9(1):91. BioMed Central Full Text
  • [17]Menn P, Holle R, Kunz S, Donath C, Lauterberg J, Leidl R, Marx P, Ruckdäschel S, Vollmar HC, Wunder S, Gräßel E: Dementia care in the general practice setting: a cluster randomized trial on the effectiveness and cost impact of three management strategies. Value Health 2012, 15(6):851-859.
  • [18]Folstein M, Folstein S, McHugh P: “Mini-Mental State”: a practical method for grading the cognitive state of patients for the clinician. J Psychiatr Res 1975, 12(3):189-198.
  • [19]Spiegel R, Brunner C, Ermini-Fünfschilling D, Monsch A, Notter M, Puxty J, Tremmel L: A new behavioral assessment scale for geriatric out- and in-patients: the NOSGER (Nurses’ Observation Scale for Geriatric Patients). Am J Geriatr Psychiatry 1991, 39(4):339-347.
  • [20]Wahle M, Häller S, Spiegel R: Validation of the NOSGER (Nurses’ Observation Scale for Geriatic Patients): reliability and validity of a caregiver rating instrument. Int Psychogeriatr 1996, 8(4):525-547.
  • [21]Mahoney FI, Barthel DW: Functional evaluation: the Barthel Index. Md State Med J 1965, 14:61-65.
  • [22]Sainsbury A, Seebass G, Bansal A, Young J: Reliability of the Barthel Index when used with older people. Age Ageing 2005, 34(3):228-232.
  • [23]Wimo A, Winblad B: Resource utilization in dementia: “RUD Lite”. Brain Aging 2003, 3(1):48-59.
  • [24]Wimo A, Nordberg G: Validity and reliability of assessments of time. Comparisons of direct observations and estimates of time by the use of the resource utilization in dementia (RUD)-instrument. Arch Gerontol Geriatr 2007, 44(1):71-81.
  • [25]Bortz J, Döring N: Forschungsmethoden und Evaluation: für Human- und Sozialwissenschaftler [Research methods and evaluation: human and social sciences]. Berlin, Heidelberg: Springer; 2006.
  • [26]Fisseni HJ: Lehrbuch der psychologischen Diagnostik [Textbook of psychological assessment]. Göttingen: Hogrefe; 1997.
  • [27]Cronbach LJ: Coefficient alpha and the internal structure of tests. Psychometrika 1951, 16(3):297-334.
  • [28]Black W, Almeida OP: A systematic review of the association between the behavioral and psychological symptoms of dementia and burden of care. Int Psychogeriatr 2004, 16(3):295-315.
  • [29]Clyburn L, Stones M, Hadjistavropoulos T, Tuokko H: Predicting caregiver burden and depression in Alzheimer’s disease. J Gerontol 2000, 55B(1):S2-S13.
  • [30]Machida A: Estimation of the reliability and validity of the short version of the 28-item Dementia Behavior Disturbance Scale. Nippon Ronen Igakkai Zasshi 2012, 49(4):463-467.
  • [31]Luppa M, Luck T, Braehler E, Koenig HH, Riedel-Heller SG: Prediction of institutionalisation in dementia. A systematic review. Dement Geriatr Cogn Disord 2008, 26(1):65-78.
  • [32]Hirono N, Tsukamoto N, Inoue M, Moriwaki Y, Mori E: Predictors of long-term institutionalization in patients with Alzheimer’s disease: role of caregiver burden. No to Shinkei Brain and Nerve 2002, 54(9):812-818.
  • [33]Braun M, Scholz U, Hornung R, Martin M: Die subjektive Belastung pflegender Ehepartner von Demenzkranken. Hinweise zur Validität der deutschen Version des Zarit Burden Interviews [Caregiver burden with dementia patients. A validation study of the German language version of the Zarit Burden Interview]. Z Gerontol Geriatr 2010, 43(2):111-119.
  • [34]Bergvall N, Brinck P, Eek D, Gustavsson A, Wimo A, Winblad B, Jönsson L: Relative importance of patient disease indicators on informal care and caregiver burden in Alzheimer’s disease. Int Psychogeriatr 2011, 23(1):73-85.
  • [35]Chattat R, Cortesi V, Izzicupo F, Del Re ML, Sgarbi C, Fabbo A, Bergonzini E: The Italian version of the Zarit Burden Interview: a validation study. Int Psychogeriatr 2011, 23(5):797-805.
  • [36]Brouwer WB, van Exel NJ, van Gorp B, Redekop WK: The CarerQol instrument: a new instrument to measure care-related quality of life of informal caregivers for use in economic evaluations. Qual Life Res 2006, 15(6):1005-1021.
  • [37]Robinson BC: Validation of a Caregiver Strain Index. J Gerontol 1983, 38(3):344-348.
  • [38]Schwarzkopf L, Menn P, Leidl R, Graessel E, Holle R: Are community-living and institutionalized dementia patients cared for differently? Evidence on service utilization and costs of care from German insurance claims data. BMC Health Serv Res 2013, 13(1):1-11. BioMed Central Full Text
  • [39]Sörensen S, Pinquart M, Duberstein P: How effective are interventions with caregivers? An updated meta-analysis. Gerontologist 2002, 42(3):356-372.
  文献评价指标  
  下载次数:44次 浏览次数:89次