Interventions to support children’s engagement in health-related decisions: a systematic review

BMC Pediatrics

Dawn Stacey¹  Michelle Leblanc⁴  Jennifer Kryworuchko⁵  Denise Harrison⁶  Margaret L Lawson²  Laura Boland⁶  Bryan Feenstra³ 

[1] Clinical Epidemiology Program, Ottawa Hospital Research Institute, Ottawa, ON, Canada;Children’s Hospital of Eastern Ontario, Ottawa, ON, Canada;University of Ottawa, Faculty of Health Sciences, Ottawa, ON, Canada;University of Ottawa, Health Sciences Library, Ottawa, ON, Canada;University of Saskatchewan College of Nursing, Saskatoon, SK, Canada;Children’s Hospital of Eastern Ontario Research Institute, Ottawa, ON, Canada

关键词: Practice;    Patient participation;    Decision making;    Adolescent;    Child;   

Others  :  1138885
DOI  :  10.1186/1471-2431-14-109

 received in 2013-11-20, accepted in 2014-04-16,  发布年份 2014

【 摘 要 】

Background

Children often need support in health decision-making. The objective of this study was to review characteristics and effectiveness of interventions that support health decision-making of children.

Methods

A systematic review. Electronic databases (PubMed, the Cochrane Library, Web of Science, Scopus, ProQuest Dissertations and Theses, CINAHL, PsycINFO, MEDLINE, and EMBASE) were searched from inception until March 2012. Two independent reviewers screened eligibility: a) intervention studies; b) involved supporting children (≤18 years) considering health-related decision(s); and c) measured decision quality or decision-making process outcomes. Data extraction and quality appraisal were conducted by one author and verified by another using a standardized data extraction form. Quality appraisal was based on the Cochrane Risk of Bias tool.

Results

Of 4313 citations, 5 studies were eligible. Interventions focused on supporting decisions about risk behaviors (n = 3), psycho-educational services (n = 1), and end of life (n = 1). Two of 5 studies had statistically significant findings: i) compared to attention placebo, decision coaching alone increased values congruence between child and parent, and child satisfaction with decision-making process (lower risk of bias); ii) compared to no intervention, a workshop with weekly assignments increased overall decision-making quality (higher risk of bias).

Conclusions

Few studies have focused on interventions to support children’s participation in decisions about their health. More research is needed to determine effective methods for supporting children’s health decision-making.

【 授权许可】

   
2014 Feenstra et al.; licensee BioMed Central Ltd.

【 图 表 】

Figure 1.

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