A Q-methodology study of flare help-seeking behaviours and different experiences of daily life in rheumatoid arthritis

BMC Musculoskeletal Disorders

Sarah Hewlett³  Rodney Hughes²  Pamela Richards⁴  Jon Pollock³  Marianne Morris³  Caroline A Flurey¹ 

[1] Academic Rheumatology Unit, The Courtyard, Bristol Royal Infirmary, Bristol BS2 8HW, UK;Ashford & St Peter’s Hospital Foundation Trust, Chertsey, UK;University of the West of England, Bristol, UK;University of Bristol, Bristol, UK

关键词: Qualitative;    Mixed-methods;    Q-methodology;    Help-seeking behaviour;    Health care seeking behaviour;    Psychological adaptation;    Psychological adjustment;    Rheumatoid arthritis;   

Others  :  1118361
DOI  :  10.1186/1471-2474-15-364

 received in 2014-01-06, accepted in 2014-10-15,  发布年份 2014

【 摘 要 】

Background

Previous studies have not addressed rheumatoid arthritis (RA) patients’ help-seeking behaviours for RA flares, and only one small qualitative study has addressed how patients experience daily life on current treatment regimes. Thus, this study aims to identify clusters of opinion related to RA patients’ experiences of daily life on current treatments, and their help-seeking behaviours for RA flares.

Methods

Using Q-methodology (a methodology using qualitative and quantitative methods to sort people according to subjective experience), two separate studies were conducted with the same sample of RA patients (mean age 55, 73% female). Thirty participants sorted 39 statements about daily life (Q-study 1) and 29 participants separately sorted 23 statements about flare help-seeking (Q-study 2). Data were examined using Q-factor analysis.

Results

Daily life with RA (Q-study 1): Three factors relating to the experience of living with RA were extracted and explained. Patients belonging to Factor A (mean age 62, 86% female) use effective self-management techniques to control the daily impact of RA. Those in Factor B (mean age 55, 75% male) struggle to self-manage and cope. Whilst patients in Factor C (mean age 42, 100% female) prioritise life responsibilities over their RA, reporting less impact.

Flare help-seeking (Q-study 2): Two factors explaining the experience of flare help-seeking (unrelated to the factors from Q-study 1) were extracted and explained. Factor X (68.8% on biologics) reported seeking help quickly, believing the medical team is there to help. Factor Y (0% on biologics) delay help-seeking, concerned about wasting the rheumatologist’s time, believing they should manage alone. All participants agreed they sought help due to intense pain and persistent, unmanageable symptoms.

Conclusions

Patients with different characteristics appear to manage RA life in different ways and men may struggle more than women. Whilst all patients are prompted to seek help by persistent, unmanageable symptoms, some delay help-seeking. Further research is needed to quantify the severity of daily symptoms, the level of symptoms needed for patients to define themselves as in flare and to understand the support needs of RA men.

【 授权许可】

   
2014 Flurey et al.; licensee BioMed Central Ltd.

【 图 表 】

Figure 1.

Figure 2.

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