Time spent on health related activities associated with chronic illness: a scoping literature review

BMC Public Health

Paul Mathews W¹  Laurann Yen¹  Tanisha Jowsey¹ 

[1] Australian Primary Health Care Research Institute, Australian National University, Ian Potter House, Corner of Gordon and Marcus Clarke Streets, Acton 0200, ACT, Australia

关键词: Literature review;    Survey;    Patient;    Carer;    Chronic illness;    Health related;    Time use;    Time;   

Others  :  1162764
DOI  :  10.1186/1471-2458-12-1044

 received in 2012-05-17, accepted in 2012-11-28,  发布年份 2012

【 摘 要 】

Background

The management of health care, particularly for people with chronic conditions, combines the activities of health professionals, patients, informal carers and social networks that support them. Understanding the non-professional roles in health management requires information about the health related activities (HRA) that are undertaken by patients and informal carers. This understanding allows management planning that incorporates the capacity of patients and informal carers, as well as identifying the particular skills, knowledge and technical support that are necessary. This review was undertaken to identify how much time people with chronic illness and their informal carers spend on HRA.

Methods

Literature searches of three electronic databases (CINAHL, Medline, and PubMed) and two journals (Time and Society, Sociology of Health and Illness) were carried out in 2011 using the following search terms (and derivatives): chronic illness AND time AND consumer OR carer. The search was aimed at finding studies of time spent on HRA. A scoping literature review method was utilised.

Results

Twenty-two peer reviewed articles published between 1990 and 2010 were included for review. The review identified limited but specific studies about time use by people with a chronic illness and/or their carers. While illness work was seen as demanding, few studies combined inquiry about both defined tasks and defined time use. It also identified methodological issues such as consistency of definition and data collection methods, which remain unresolved.

Conclusions

While HRA are seen as demanding by people doing them, few studies have measured actual time taken to carry out a comprehensive range of HRA. The results of this review suggest that both patients with chronic illness and informal carers may be spending 2 hours a day or more on HRA. Illnesses such as diabetes may be associated with higher time use. More empirical research is needed to understand the time demands of self-management, particularly for those affected by chronic illness.

【 授权许可】

   
2012 Jowsey et al.; licensee BioMed Central Ltd.

【 图 表 】

Figure 1.

【 参考文献 】

• [1]Jeon Y-H, Jowsey T, Yen L, Glasgow NJ, Essue B, Kljakovic M, et al.: Achieving a balanced life in the face of chronic illness. Aust J Prim Health 2010, 16:66-74.
• [2]Corbin J, Strauss A: Managing chronic illness: three lines of work. Qual Soc 1985, 8(3):224-247.
• [3]Fisher K, Jenifer T, Evrim A, Matthew B, Antony J, Jiweon J: Technical details of time Use studies. United Kingdom: Centre for Time Use Research, University of Oxford; 2011. other members of the Time Use Team Last updated 30 January 2011
• [4]Arksey H, O'Malley L: Scoping studies: towards a methodological framework. Int J Soc Res Methodol 2005, 8(1):19-32.
• [5]Ridde V, Robert E, Meessen B: A literature review of the disruptive effects of user fee exemption policies on health systems. BMC Public Health 2012, 12(1):289-304. BioMed Central Full Text
• [6]Braithwaite V: Bound to care. Sydney: Allen & Unwin; 1990.
• [7]Ironmonger D: The Value of Care and Nurture Provided by Household Work. Family Matters 1994., 37(April)
• [8]Jenkins CL: Women, work, and caregiving: How do these role affect women's well-being? J Women Aging 1997, 9(3):27-45.
• [9]Langa KM, Fendrick AM, Flaherty KR, Martinez FJ, Kabeto MU, Saint S: Informal caregiving for chronic lung disease among older Americans. Chest 2002, 122(6):2197-2203.
• [10]Paoletti I: A half life: women caregivers of older disabled relatives. J Women Aging 1999, 11(1):53-67.
• [11]Bittman M, Thomson C: Invisible support: the determinants of time spent in informal care. In Volunteers & volunteering. Edited by Warburton J, Oppenheimer M. Sydney: Federation Press; 2000:98-112.
• [12]Bittman M, Fast J, Fisher K, Thomson C: Making the invisible visible. The life and time(s) of informal caregivers. In Family Time: The Social Organization of Care. Edited by Folbre N, Bittman M. London: Routledge; 2004:69-89.
• [13]Bittman M, Fisher K, Hill P, Thomson C: The time cost of care. Int J Time Use Res 2005, 2(1):54-66.
• [14]Wolf DA: Valuing informal elder care. In Family Time: The Social Organization of Care. Edited by Folbre N, Bittman M. London: Routledge; 2004:110-129.
• [15]De Vaus D: Time Use. Diversity and change in australian families: statistical profiles. Canberra: Australian Institute of family studies; 2004.
• [16]Adams J: Prevalence and socio-demographic correlates of "active transport" in the UK: analysis of the UK time use survey 2005. Prev Med 2010, 50(4):199-203.
• [17]McCoy L: Time, self and the medication day: a closer look at the everyday work of ‘adherence’. Sociol Health Illn 2009, 31(1):128-146.
• [18]Russell LB, Dong-Churl S, Safford MM: Time requirements for diabetes self-management: Too much for many? J Fam Pract 2005, 54(1):52-56.
• [19]Safford MM, Russell L, Suh DC, Roman S, Pogach L: How much time do patients with diabetes spend on self-care? J Am Board Fam Med 2005, 18(4):262-270.
• [20]Russell LB, Ibuka Y, Abraham KG: Health-related activities in the American time use survey. Med Care 2007, 45(7):680-685.
• [21]McKenna K, Liddle J, Brown A, Lee K, Gustafsson L: Comparison of time use, role participation and life satisfaction of older people after stroke with a sample without stroke. Aust Occup Ther J 2009, 56(3):177-188.
• [22]Russell LB, Ibuka Y, Carr D: How much time do patients spend on outpatient visits?: the American time Use survey. The Patient. 2008, 1(3):211-222.
• [23]Yabroff KR, Warren JL, Knopf K, Davis WW, Brown ML: Estimating patient time costs associated with colorectal cancer care. Med Care 2005, 43(7):640-648.
• [24]Hu P, Reuben DB: Effects of managed care on the length of time that elderly patients spend with physicians during ambulatory visits. Med Care 2002, 40(7):606-613.
• [25]Pritchard P: Doctors, patients and time. In Time, health and medicine. Edited by Frankenburg R. London: Sage publications; 1992:75-93.
• [26]Ettner SL, Cadwell BL, Russell LB, Brown A, Karter AJ, Safford M, et al.: Investing time in health: Do socio-economically disadvantaged patients spend more or less extra time on diabetes self-care? Health Econ 2009, 18:645-663.
• [27]Ng GT: Singapore: characteristics of family caregivers and care recipients and their care-giving experiences. Hallym Int J Aging 2008, 10(1):141-162.
• [28]Schofield HL, Herrman HE, Bloch S, Howe A, Singh B: A profile of Australian family caregivers: diversity of roles and circumstances. Aust N Z J Public Health 1997, 21(1):59-66.
• [29]Australian Bureau of Statistics: The Australian national health survey (2007–2008). Canberra: Australian Bureau of Statistics (ABS) cat No. 4364.0 2009;
• [30]Australian Bureau of Statistics: The Australian time Use survey: How Australians Use their time. Canberra: Australian Bureau of Statistics ABS cat. No. 4153.02006; 2006.
• [31]Reed SD, Li Y, Oddone EZ, Neary AM, Orr MM, Grubber JM, et al.: Economic evaluation of home blood pressure monitoring with or without telephonic behavioral self-management in patients with hypertension. Am J Hypertens 2010, 23(2):142-148.
• [32]Bookman A, Harrington M: Family caregivers: a shadow workforce in the geriatric health care system? J Health Polit Policy Law 2007, 32(6):1005-1041.
• [33]Armstrong D: Space and time in British general practice. Soc Sci Med 1985, 20(7):659-666.
• [34]Singleton JK: Caring for themselves: facilitators and barriers to women home care workers who are chronically ill following their care plan. Health Care Women Int 2002, 23(1):692-702.