期刊论文详细信息
BMC Research Notes
Telephone interviews and online questionnaires can be used to improve neurodevelopmental follow-up rates
Elaine M Boyle1  Neil Marlow2  Elizabeth S Draper1  David Field1  Lucy K Smith1  Bradley N Manktelow1  Sarah E Seaton1  Samantha Johnson1 
[1] Department of Health Sciences, University of Leicester, 22-28 Princess Road West, Leicester LE1 6TP, UK;Department of Academic Neonatology, Institute for Women’s Health, University College London, London, UK
关键词: Questionnaire;    Cohort study;    Response rates;    Follow-up;    Neurodevelopmental outcomes;   
Others  :  1133965
DOI  :  10.1186/1756-0500-7-219
 received in 2014-03-05, accepted in 2014-03-20,  发布年份 2014
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【 摘 要 】

Background

Maximising response rates to neurodevelopmental follow-up is a key challenge for paediatric researchers. We have investigated the use of telephone interviews and online questionnaires to improve response rates, reduce non-response bias, maintain data completeness and produce unbiased outcomes compared with postal questionnaires when assessing neurodevelopmental outcomes at 2 years.

Methods

A prospective cohort study of babies born ≥32 weeks gestation. Neurodevelopmental outcomes were assessed at 2 years of age using a parent questionnaire completed via post, telephone or online. Relative Risks with 95% confidence intervals (RR; 95% CI) were calculated to identify participant characteristics associated with non-response and questionnaire response mode (postal vs. telephone/online). The proportion of missing data and prevalence of adverse outcomes was compared between response modes using generalized linear models.

Results

Offering telephone/online questionnaires increased the study response rate from 55% to 60%. Telephone/online responders were more likely to be non-white (RR 1.6; [95% CI 1.1, 2.4]), non-English speaking (1.6; [1.0, 2.6]) or have a multiple birth (1.6; [1.1, 2.3]) than postal responders. There were no significant differences in the prevalence of adverse neurodevelopmental outcomes between those who responded via post vs. telephone/online (1.1; [0.9, 1.4]). Where parents attempted all questionnaire sections, there were no significant differences in the proportion of missing data between response modes.

Conclusions

Where there is sufficient technology and resources, offering telephone interviews and online questionnaires can enhance response rates and improve sample representation to neurodevelopmental follow-up, whilst maintaining data completeness and unbiased outcomes.

【 授权许可】

   
2014 Johnson et al.; licensee BioMed Central Ltd.

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【 参考文献 】
  • [1]Wolke D, Sohne B, Ohrt B, Riegel K: Follow-up of preterm children: important to document dropouts. Lancet 1995, 345:447.
  • [2]Guillen U, DeMauro S, Ma L, Zupancic J, Roberts R, Schmidt B, Kirpalani H: Relationship between attrition and neurodevelopmental impairment rates in extremely preterm infants at 18 to 24 months: a systematic review. Arch Pediatr Adolesc Med 2012, 166(2):178-184.
  • [3]Johnson S, Fawke J, Hennessy E, Rowell V, Thomas S, Wolke D, Marlow N: Neurodevelopmental disability through 11 years in children born before 26 weeks of gestation: the EPICure study. Pediatrics 2009, 124:e249-e257.
  • [4]Moore T, Hennessy EM, Myles J, Johnson SJ, Draper ES, Costeloe KL, Marlow N: Neurological and developmental outcome in extremely preterm children born in England in 1995 and 2006: the EPICure studies. BMJ 2012, 345:e7961.
  • [5]Pennefather PM, Tin W, Clarke MP, Dutton J, Fritz S, Hey EN: Bias due to incomplete follow up in a cohort study. Br J Ophthalmol 1999, 83(6):643-645.
  • [6]Tin W, Fritz S, Wariyar U, Hey E: Outcome of very preterm birth: children reviewed with ease at 2 years differ from those followed up with difficulty. Arch Dis Child Fetal Neonatal Ed 1998, 79(2):F83-F87.
  • [7]Kramer MS, Wilkins R, Goulet L, Seguin L, Lydon J, Kahn SR, McNamara H, Dassa C, Dahhou M, Masse A, Miner L, Asselin G, Gauthier H, Ghanem A, Benjamin A, Platt RW, Montreal Prematurity Study Group: Investigating socio-economic disparities in preterm birth: evidence for selective study participation and selection bias. Paediatr Perinat Epidemiol 2009, 23(4):301-309.
  • [8]Edwards PJ, Roberts IG, Clarke MJ, DiGuiseppi C, Wentz R, Kwan I, Cooper R, Felix L, Pratap S: Methods to increase response rates to postal questionnaires. Cochrane Database Syst Rev 2007, (2):MR000008.
  • [9]Nakash RA, Hutton JL, Jorstad-Stein EC, Gates S, Lamb SE: Maximising response to postal questionnaires–a systematic review of randomised trials in health research. BMC Med Res Methodol 2006, 6:5. BioMed Central Full Text
  • [10]Brambilla DJ, McKinlay SM: A comparison of responses to mailed questionnaires and telephone interviews in a mixed mode health survey. Am J Epidemiol 1987, 126(5):962-971.
  • [11]Lall R, Mistry D, Bridle C, Lamb SE: Telephone interviews can be used to collect follow-up data subsequent to no response to postal questionnaires in clinical trials. J Clin Epidemiol 2012, 65(1):90-99.
  • [12]Feveile H, Olsen O, Hogh A: A randomized trial of mailed questionnaires versus telephone interviews: response patterns in a survey. BMC Med Res Methodol 2007, 7:27. BioMed Central Full Text
  • [13]Bowling A: Mode of questionnaire administration can have serious effects on data quality. J Public Health (Oxf) 2005, 27(3):281-291.
  • [14]Parker C, Dewey M: Assessing research outcomes by postal questionnaire with telephone follow-up: TOTAL study group: trial of occupational therapy and leisure. Int J Epidemiol 2000, 29(6):1065-1069.
  • [15]Kiezebrink K, Crombie IK, Irvine L, Swanson V, Power K, Wrieden WL, Slane PW: Strategies for achieving a high response rate in a home interview survey. BMC Med Res Methodol 2009, 9:46. BioMed Central Full Text
  • [16]Choudhury Y, Hussain I, Parsons S, Rahman A, Eldridge S, Underwood M: Methodological challenges and approaches to improving response rates in population surveys in areas of extreme deprivation. Prim Health Care Res Dev 2012, 13(3):211-218.
  • [17]Cook KF, Choi SW, Crane PK, Deyo RA, Johnson KL, Amtmann D: Letting the CAT out of the bag: comparing computer adaptive tests and an 11-item short form of the Roland-Morris disability questionnaire. Spine 2008, 33(12):1378-1383.
  • [18]Dillman DA, Phelps G, Tortora R, Swift K, Kohrell J, Berck J, Messer BL: Response rate and measurement differences in mixed-mode surveys using mail, telephone, interactive voice response (IVR) and the internet. Soc Sci Res 2009, 38:1-18.
  • [19]SurveyMonkey 2014.
  • [20]The Office for National Statistics: Standard Occupational Classification 2010: Volume 3 The National Statistics Socio-economic Classification User Manual. London: Palgrave Macmillan; 2010.
  • [21]Gardosi J, Francis A: Customised Weight Centile Calculator. In GROW version 5.16. Year Gestation Network; [http://www.gestation.net webcite]
  • [22]Johnson S, Wolke D, Marlow N: Developmental assessment at 2 years: validity of parent reports. Dev Med Child Neurol 2008, 50:58-62.
  • [23]Johnson S, Marlow N, Wolke D, Davidson L, Marston L, O’Hare A, Peacock J, Schulte J: Validation of a parent report measure of cognitive development in very preterm infants. Dev Med Child Neurol 2004, 46:389-397.
  • [24]British Association of Perinatal Medicine: Report of a BAPM/RCPCH Working Group: Classification of health status at 2 years as a perinatal outcome. London: BAPM; 2008.
  • [25]Williams RL: A note on robust variance estimation for cluster-correlated data. Biometrics 2000, 56(2):645-646.
  • [26]Quigley MA, Poulsen G, Boyle E, Wolke D, Field D, Alfirevic Z, Kurinczuk JJ: Early term and late preterm birth are associated with poorer school performance at age 5 years: a cohort study. Arch Dis Child Fetal Neonatal Ed 2012, 97(3):F167-F173.
  • [27]Lynn P, Burton J, Kaminska O, Knies G, Nandi A: An initial look at non-response and attrition in Understanding Society. In Understanding Society Working Paper Series. Edited by Research IfSaE, vol. 2012-02. Essex: Institute for Social and Economic Research; 2012.
  • [28]Marlow N, Greenough A, Peacock JL, Marston L, Limb ES, Johnson AH, Calvert SA: Randomised trial of high frequency oscillatory ventilation or conventional ventilation in babies of gestational age 28 weeks or less: respiratory and neurological outcomes at 2 years. Arch Dis Child Fetal Neonatal Ed 2006, 91(5):F320-F326.
  • [29]Martin AJ, Darlow BA, Salt A, Hague W, Sebastian L, McNeill N, Tarnow-Mordi W: Performance of the parent report of children’s abilities-revised (PARCA-R) versus the Bayley scales of infant development III. Arch Dis Child 2013, 98(12):955-958.
  • [30]Cuttini M, Ferrante P, Mirante N, Chiandotto V, Fertz M, Dall’Oglio AM, Coletti MF, Johnson S: Cognitive assessment of very preterm infants at 2-year corrected age: performance of the Italian version of the PARCA-R parent questionnaire. Early Hum Dev 2012, 88(3):159-163.
  • [31]Martin AJ, Darlow BA, Salt A, Hague W, Sebastian L, Mann K, Tarnow-Mordi W, Inis Trial Collaborative G: Identification of infants with major cognitive delay using parental report. Dev Med Child Neurol 2012, 54(3):254-259.
  • [32]Ziegenfuss JY, Burmeister KR, Harris A, Holubar SD, Beebe TJ: Telephone follow-up to a mail survey: when to offer an interview compared to a reminder call. BMC Med Res Methodol 2012, 12:32. BioMed Central Full Text
  • [33]Asch DA, Jedrziewski MK, Christakis NA: Response rates to mail surveys published in medical journals. J Clin Epidemiol 1997, 50(10):1129-1136.
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