Context: For people with epilepsy, the potential value of health information exchange (HIE) is unknown.Methods: We reviewed two years of clinical encounters for 8055 people with epilepsy from seven Manhattanhospitals.We created network graphs illustrating crossover among these hospitals for multiple encounter types, andcalculated a novel metric of care fragmentation: “encounters at risk for missing clinical data.” Results: Given two hospitals, a median of 109 [range 46588] patients with epilepsy had visited both.Due to thiscrossover, recent, relevant clinical data may be missing at the time of care frequently (44.8% of ED encounters,34.5% inpatient, 24.9% outpatient, and 23.2% radiology).Though a smaller percentage of outpatient encounterswere at risk for missing data than ED encounters, the absolute number of outpatient encounters at risk was threetimes higher (14,579 vs. 5041).
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Potential Value of Health Information Exchange for People with Epilepsy: Crossover Patterns and Missing Clinical Data