Community Centered Family Health History. Collaboration Across Communities: How Do You Make Research Community-Specific and Universally-Relevant

Vaughn Edelson ; Sharon Terry ; and James O'Leary. Ilana Harlow and Margaret Kruesi. Dawn McGee and Charlie Strange. Penny Kyler ; Claudia Petruccio ; Marc Williams and Janet Williams. Penelope Moore ; William Gratzer ; and Caroline Lieber. Alejandra Gepp ; Nicora Gardner ; Karen O'Quinn and Teresa Gardner. Meghan Jernigan ; Alice Park ; and Ralph Forquera

Publisher: Genetic Alliance

Subject:生物科学（综合）

美国

【 摘 要 】

Evaluation of family health history represents a first step in identifying genetic contributors to health and can serve as an important basis for improving healthcare and encouraging a healthy lifestyle. Though family health history tools abound, neither the premise that they will make a difference in health outcomes nor the analysis of their usefulness along a medical-nonmedical continuum has been validated in a systematic, evidence-based study as measured by changed behavior leading to better personal health. The fundamental purpose of this project was to create and evaluate a customizable, nonmedical family health history toolkit (Does It Run In the Family), informed by oral history and folklore traditions.

【 授权许可】

   
Copyright 2013, Genetic Alliance.All Genetic Alliance content, except where otherwise noted, is licensed under a Creative Commons Attribution License, which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited.

【 图 表 】

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