|Community Centered Family Health History. Collaboration Across Communities: How Do You Make Research Community-Specific and Universally-Relevant|
|Vaughn Edelson ; Sharon Terry ; and James O'Leary. Ilana Harlow and Margaret Kruesi. Dawn McGee and Charlie Strange. Penny Kyler ; Claudia Petruccio ; Marc Williams and Janet Williams. Penelope Moore ; William Gratzer ; and Caroline Lieber. Alejandra Gepp ; Nicora Gardner ; Karen O'Quinn and Teresa Gardner. Meghan Jernigan ; Alice Park ; and Ralph Forquera|
|Publisher: Genetic Alliance|
【 摘 要 】Evaluation of family health history represents a first step in identifying genetic contributors to health and can serve as an important basis for improving healthcare and encouraging a healthy lifestyle. Though family health history tools abound, neither the premise that they will make a difference in health outcomes nor the analysis of their usefulness along a medical-nonmedical continuum has been validated in a systematic, evidence-based study as measured by changed behavior leading to better personal health. The fundamental purpose of this project was to create and evaluate a customizable, nonmedical family health history toolkit (Does It Run In the Family), informed by oral history and folklore traditions.
Copyright 2013, Genetic Alliance.All Genetic Alliance content, except where otherwise noted, is licensed under a Creative Commons Attribution License, which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited.
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